Home\For health professionals\Data security practices
Back Data security practices

Data security practices

GenV is reliant on the trust of not only participants, but those indirectly or otherwise involved with GenV. This includes the health professionals supporting families, and the original custodians of participant information.

With that in mind, GenV is built with a number of precautions to ensure participant information is stored in a secure and safe way, and kept confidential.

GenV data we have on families is de-identified, maintaining participants’ privacy regardless of any validated researchers or organisations that use their data.

Any researchers or service providers accessing data have to:

  • pass a stringent review process to check their credentials,
  • make sure the data is secure, and
  • ensure that their work is to the benefit of families.

If successful, users accessing data will not have physical data access, only virtual access.

Learn more about how GenV will look after participant information.