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The GenV Registries Group aims to improve knowledge about health problems and conditions. How, when and in whom do they develop? How common are they? What are their characteristics, and how do they progress? Can we improve their outcomes? The expert group helps GenV to support existing registries and develop new ones.


Interested in working with us?

If you would like to collaborate with GenV, please request an EOI form for your trial, registry, or other research ideas. To request or submit an EOI or for more information, please contact

We thank our Working Group members listed below: